Narrative Matters

Health care decision making affects patients and families first and foremost, yet their perspectives are not always factored into health policy deliberations and discussions. In this anthology, Jessica Bylander brings together the personal stories of the patients, physicians, caregivers, policy makers, and others whose writings add much-needed human context to health care decision making.

Drawn from the popular "Narrative Matters" column in the leading health policy journal Health Affairs, this collection features essays by some of the leading minds in health care today, including Pulitzer Prize–winner Siddhartha Mukherjee, MacArthur fellow Diane Meier, former Planned Parenthood president Leana S. Wen, and former secretary of health and human services Louis W. Sullivan. The collection also presents important stories from lesser-known voices, including a transgender doctor in Oklahoma who calls for better treatment of trans patients and a palliative care physician who reflects on how perspectives on hastening death have changed in recent years. A foreword written by National Humanities Medal recipient Abraham Verghese, MD, further rounds out the book.

The collection of thirty-two essays is organized around several themes:

• the practice of medicine
• medical innovation and research
• patient-centered care
• the doctor-patient relationship
• disparities and discrimination
• aging and end-of-life care
• maternity and childbirth
• opioids and substance abuse

The narratives in this timely and diverse collection remind readers of the real people affected by health policy decisions and offer clear calls for policy action to improve health care. Narrative Matters is a powerful argument for humane, patient-centered care.

Contributors: Louise Aronson, Laura Arrowsmith, Cheryl Bettigole, Cindy Brach, Gary Epstein-Lubow, Jonathan Friedlaender, Patricia Gabow, Katti Gray, Yasmin Sokkar Harker, Timothy Hoff, Carla Keirns, Raya Elfadel Kheirbek, Katy B. Kozhimannil, Pooja Lagisetty, Maria Maldonado, Maureen A. Mavrinac, Diane E. Meier, Dina Keller Moss, Siddhartha Mukherjee, Donna Jackson Nakazawa, Travis N. Rieder, Aroonsiri Sangarlangkarn, Elaine Schattner, Janice Lynch Schuster, Myrick C. Shinall, Gayathri Subramanian, Louis W. Sullivan, Gautham K. Suresh, Abraham Verghese, Otis Warren, Leana S. Wen, Charlotte Yeh